John Ray Elinor is 6 months old and has Spina Bifida. There are difference types but John has Myelomeningocele, the most serious form. It means a child is born with their spinal cord exposed, causing severe nerve damage and often paralysis. But with proper medical care, physical therapy, and community support, these children grow up to live active, independent, and joyful lives. He also has Hydrocephalus, excessive accumulation of cerebrospinal fluid (CSF) within cavities of his brain/ventricles. This excess fluid causes ventricles to widen, which puts harmful press on the tissues of the brain. Currently, there isn’t a cure for hydrocephalus, but it can be treated. John had a shunt placed on May 1st, this is be a life long device to reduce the fluid buildup. He is now in Occupation Therapy and will start Physical Therapy soon. John is the son of Justin & Kelsey Elinor, Grandson of Nancy Jarred Glover & Greg Glover and Penny & James Shawver.
Lifelong : a journey requiring extensive pediatric care, neurosurgery, urological care, and physical or occupational therapy.